Down's Syndrome Screening and Reproductive Politics

Nominated for the Foundation of Sociology of Health and Illness Book Prize 2018 In the UK and beyond, Downs syndrome screening has become a universal programme in prenatal care. But why does screening persist, particularly in light of research that highlights pregnant womens ambivalent and problematic experiences with it? Drawing on an ethnography of Downs syndrome screening in two UK clinics, Thomas explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, and rituals of everyday life, Downs Syndrome Screening and Reproductive Politics describes the banal world of the clinic and, in particular, the professionals contained within it who are responsible for delivering this programme. In so doing, it illustrates how Downs syndrome screening is downgraded and subsequently stabilised as a routine part of a pregnancy. Further, the book captures how this routinisation is deepened by a systematic, but subtle, framing of Downs syndrome as a negative pregnancy outcome. By unpacking the complex relationships between professionals, parents, technology, policy, and clinical practice, Thomas identifies how and why screening is successfully routinised and how it is embroiled in both new and familiar debates surrounding pregnancy, ethics, choice, diagnosis, care, disability, and parenthood. The book will appeal to academics, students, and professionals interested in medical sociology, medical anthropology, science and technology studies (STS), bioethics, genetics, and/or disability studies.