bokomslag Ultra-Violet
Familj

Ultra-Violet

Debbie Frisk Chelsea McCutchin

Pocket

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  • 82 sidor
  • 2014
Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Ultra-Violet: One Girl's Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet.
  • Författare: Debbie Frisk, Chelsea McCutchin
  • Format: Pocket/Paperback
  • ISBN: 9781939418708
  • Språk: Engelska
  • Antal sidor: 82
  • Utgivningsdatum: 2014-09-08
  • Förlag: Rtc Publishing